Almost Home Kids helps our parents and caregivers connect with medical, governmental and community resources and agencies. The list below has been put together by our social work team – new updated info and links have been added recently:
American Academy of Pediatrics
Dedicated to the Health of all Children, this physician-run academy provides an excellent source of information to parents/caregivers.
American Cancer Society
Information on childhood cancer:
American Lung Association of Illinois – Greater Chicago
This statewide health organization has the state’s leading experts on lung disease as members. The mission is to make a world free of lung disease and to promote lung health.
The ARC of Illinois
Statewide Health Information Resource for Families of Children and Youth with Special Needs. It is committed to empowering persons with disabilities to achieve full participation in community life through informed choices.
We equip people with disabilities with the tools to overcome societal barriers to inclusion by imparting independent living skills, teaching economic self-sufficiency, and enabling people with disabilities to transition to autonomous community living
The Birth Injury Justice Center
The Birth Injury Justice Center has compiled the most in-depth resources nationwide to help guide and serve all families with disabilities caused by physical birth injuries https://www.childbirthinjuries.com
Center for Disability & Elder Law
The Chicago Bar Association founded this nonprofit organization dedicated to protecting and advancing the legal rights of low-income persons with disabilities and senior citizens in Cook County.
The Center for Independence through Conductive Education
Provides unique intensive group method of special education which expects and demands active learning and participation by the child in attempting to overcome his/her motor disability (i.e., cerebral palsy, traumatic brain injury), The founder’s motto: When you do not educate the child to be independent, you educate the child to be dependent. Dr. Andras Peto.
Cerebral Palsy Group – Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP. https://cerebralpalsygroup.com/
Cerebral Palsy Guidance – Cerebral Palsy Guidance covers medical information, like symptoms and treatment, as well as daily living topics, including counseling, abuse, college/careers, bullying and more. You can read more at cerebralpalsyguidance.com/cerebral-palsy/living/
Community Support Services
A private not-for-profit service agency that initiates provides and promotes services for people with developmental disabilities and their families, within their communities.http://www.communitysupportservices.org
Easter Seals Disability Services
Easter Seals DuPage and the Fox Valley Region provides services for infants, children and adults with disabilities to achieve maximum independence, and to provide support for the families who love and care for them. http://dfvr.easterseals.com/site/PageServer?pagename=ILDU_contactus
Entertainment Guide for Families of Children with Special Needs
Family vacations and daytrips enrich everyone’s lives. They can provide children and parents with new perspectives, not to mention relaxation mixed with excitement. Unfortunately, vacations are also a source of stress for many families – and particularly those that include a child with special needs. But with a little planning, preparation and information, a trip can be a source of joy rather than distress. Here are some great ideas for families to explore.
Ever Thrive Illinois
Ever Thrive Illinois works to improve the health of women, children, and families over the lifespan through community engagement, partnerships, policy analysis, education, and advocacy.
Family Support Network of Illinois
Their mission is to unify individuals with disabilities and their families to advocate for funding, services, and community resources that strengthen and support the individual and empowering them to life in their own homes.
Health & Disability Advocates
HDA is a social innovator that promotes health and economic security for vulnerable populations so that they can lead secure, dignified lives. HDA works with, but is not limited to, the following: low income families and individuals, children, youth, older adults, adults with disabilities, and Veterans and service members.
Helping Children with Cerebral Palsy
Cerebral palsy (CP) is a disability caused by brain damage that restricts normal movement and coordination. Each year, 10,000 children in the U.S. are diagnosed with cerebral palsy. Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
Since 1980 this foundation has enriched the lives of children with life-threatening medical conditions through its wish-granting work.
Providing “Trusted Health Information for You” this government website has topics and news on conditions, diseases and wellness.
National Center for Learning Disabilities
Special Education Services for students with learning disabilities are covered under the Individuals with
Disabilities Learning Act (IDEA) which provides states with federal funds to help make special education services available to students with disabilities. http://www.ncld.org/
Normal Moments, Inc.
Helping parents/caregivers of children with critical illnesses by providing support to them in the home, in hospital and via web resources.
An independent Services Coordination Agency in DuPage County, providing individual service coordination for people with disabilities.
The Kids Equipment Network
We are a not-for-profit 501(c)(3) organization dedicated to connecting children with special needs, from birth to 21 years of age, who have little or no funding, with needed durable adaptive equipment.
Governmental Agencies –
Departments of Health – by County in Illinois
Your resource for many Health Services: mental health, community and environmental health.
Specific websites for childhood immunizations and the WIC programs in some Northern Illinois counties are given below:
WIC: Women Infants & Children Clinics
WIC is a federally funded program to aid low income pregnant, postpartum and breastfeeding women and children up to the age of 5 who are at nutritional risk. The Food and Nutrition Services branch of the U.S. Department of Agriculture makes grants to states to provide supplemental foods, health care referral and nutrition education to women, infants and children.
Department of Human Services – Illinois
Services to help families meet basic needs and to become self-sufficient. Links to Early intervention services for children up to three years of age are included in the second and third link below.
Division of Specialized Services for Children
The link below provides an information library and resources for families and children with special health care needs.
This link brings you to a pamphlet entitled “Planning for your Teenager’s Future” for families of teenagers with special needs.